In mid 2003 I lost my breath and was diagnosed Alpha 1 deficiency. Since autmn 2004 I am receiving augmentation therapy and since then my condition has been stable, but lung functions slowly decreasing. I climbed till summer 2015, since then lungs could no longer provide me enough oxigen even to walk, so the 2 years till September 2017 have been tough

On 22nd of September 2017 I had lungs transplantation performed at AKH Wien and I hope I will be fit again soon. I have to thank the team at AKH Wien and Pulmology dep at UKC Ljubljana to give me the chance for my "second life"

My lungs transplantation

My story


Every week I receive IV of Kamada's medicine that helps me live


Sometimes we make IV on very odd places like this base camp in Tajikistan at 2700m


Attending Alpha 1 conference in Orlando Florida where my efforts to fight the disease have been presented


I have to thank Kamada's medicine that I could still climb till 2015

Things you should do if you suffer Alpha 1 defficiency:

1. Consult your pulmologist(s) and do what they say

2. Augmentation therapy

3. Excersise

4. Proper nutrition / keep your body mass index from 18,5-24,9